In sub-Saharan Africa, millions of children like this
die before the age of 5.
Join us in taking meaningful action
to help keep each one of them alive and well, into productive adulthood.
With decades of dedicated service to the global sickle cell disease community, Professor Kwaku Ohene-Frempong transformed the landscape of SCD care, research, and advocacy across the world.
He championed newborn screening, evidence-based care, and public education, which has today shaped modern SCD management.
As a father to a son living with sickle cell disease, Professor Ohene-Frempong understood the daily realities, challenges, and hopes of families affected by SCD. This experience further strengthened his passion to improve care and outcomes for families everywhere.
Through his works, countless healthcare professionals, families, and SCD warriors were empowered with knowledge, hope, and practical solutions. His leadership strengthened international partnerships and improved access to quality care in Africa particularly, Ghana.
His life and legacy remind us that with vision, compassion, and persistence, we can transform pain into purpose and challenges into lasting impact. KOF remains a beacon of hope and a true inspiration in the global movement to conquer Sickle Cell Disease.
By empowering communities and uniting voices, we can overcome the challenges of Sickle Cell Disease — together, stronger.
Improving the quality of lives for individuals.
Early diagnosis of Sickle Cell Disease is crucial for timely care, improved health outcomes, and a better quality of life.
Prevent complications, reduce hospital visits, and empower individuals with Sickle Cell Disease to live healthier, fuller lives.
Advocacy support gives a voice to Sickle Cell warriors, driving awareness, policy change, and better care.