We raise and attempt to maintain public awareness and understanding about sickle cell disease.
Our aim is to provide facts and dispel misinformation so that:
• Sickle Cell Warriors and their families will receive the most well-informed health care available in Ghana.
• Sickle cell Warriors and their families will receive the social respect and support that they need and deserve.
• People in the general public can make informed genetic decisions when they are planning to have children.
• The Government of Ghana will receive public support it needs for implementing its Strategic Plan for SCD
Our goal is to raise awareness of Sickle Cell Disease from its current 15% impact (in 2025) to 75% in 3 years.
Through our community outreach efforts, we have made 25% progress towards our objective.
We engage in ongoing media campaigns to promote Awareness and Education of Sickle Cell Disease across the country.
This includes annual field campaigns, and routine media publications, radio, TV and social media education campaigns.
In partnership Ablekuma North Health Directorate and Ghana Education Service, we conducted:
✓ Programs for over 2,500 school children between the ages of 6 years to 18 years in Basic and Junior High Schools, and Senior High Schools.
✓ A program for 250 basic school children in the Saleria 1 and 2 cluster of schools in Ablekuma
In partnership with Rotary Club of Ghana, Education Services, various health institutions and medical officers and corporate sponsors, we conducted:
✓ A program at the Borstal - Correctional Institute
✓ At the Ark Foundation for Abused Women
✓ In partnership with Feed the Streets and organizing NHIS enrollment drives, we conducted: A program for over 1000 Street Children in the Madina-Shiashie vicinity
Through a series of outreach visits to various homes within impoverished communities:
✓ We visited the homes of children who had been identified as having the Sickle Gene (do you mean sickle cell disease?), but who were not enrolled into treatment:
✓ We supported their respective families in getting treatment for their children through their community healthcare centers
✓ With genetic counseling gradually becoming a focus within our churches and community groups as part of their established marriage counseling, we are working towards strengthening our partnerships with churches and other religious groups to increase awareness within these settings.