We align with Ghana’s National Strategy for Sickle Cell Disease (2024) and support Ghana’s 6 Implementation Strategies designed to improve health outcomes of individuals with SCD.
1. Ensure Universal Newborn Screening for SCD.
2. Develop Mechanisms for Catch-Up Screening.
3. Improve Facilities, Laboratory, and Diagnostic Capacities, Equipment, Infrastructure.
4.Build Capacity on SCD - Skilled Workforce, Pre-Service Training Institutions.
5. Improve Access to Medicines, Technologies, and Innovation.
6. Develop Outreach Services for SCD.
Our aim is to stay engaged with policy makers so that we can:
• Represent our sickle cell community
• Help to influence policy maker decisions
• Encourage accountability
• Work for sustainable, systemwide change
Our goal is to:
• promote government legislation to implement reforms in healthcare centers,
• promote education on SCD in institutions and community settings
• reduce the burden of Sickle Cell Disease annually by 5%.
We work to make hydroxyurea treatment more accessible.
• Our cherished accomplishment is for our, now, Executive Director to have been part of the delegation led by the Sickle Cell Foundation of Ghana that called on Former Vice President Dr. Mahamudu Bawumia to place a medication (Hydroxyurea) for treatment of SCD on the national health insurance.
• Hydroxyurea was subsequently placed on the essential drug list under NHIS in 2022.
• We continue to engage government and our legislators on widening the scope of NHIS coverage for persons with SCD, due its heavy financial burden on persons with SCD and their caregivers.
We work across government agencies
As stakeholders, we continue to engage with the following overnmental entities to promote the wellbeing of Sickle Cell Warriors and their families:
• The Ministry of Health,
• The Ministry of Education
• The Ministry of Gender, Children, and Social Protection, as well as
• The Ghana Health Service
• The Ministry of Health’s recent 2024 call to action on Sickle Cell Disease has opened up ongoing dialogues with stakeholders within the sickle cell community.
Through these ongoing dialogues, we are looking to sharpen legislation around the National Sickle Cell Agenda. We do so to further advance our cause for making improvements in the quality of care through the implementation of best practices.