Home | Sickle Gene Action

(1946–2022)

OUR INSPIRATION

Kwaku Ohene-Frempong, MD

("Kof", "Prof")

Internationally respected and beloved pediatric hematology clinician and researcher.

First to introduce newborn screening for sickle cell disease into Sub-Saharan Africa. (Initiated in 1992)

Founder and President of Sickle Cell Foundation of Ghana (2004 - 2022)

Leader in the development of The SPARCo Standards of Care for Sickle Cell Disease in Sub-Saharan Africa. (Released in August 2023)
We will advocate to build on the groundwork he laid for us in Ghana and in Sub-Saharan Africa

OUR MISSION

Improving the quality of lives for individuals with sickle cell disease through early action.

Early Diagnosis
Early Life Saving Treatment
Early Advocacy And Awareness Support Services for Sickle Cell Disease

OUR OBJECTIVES

Reduce stigma and raise awareness.
Reduce the mortality by promotion of New Born Screening in Ghana.
Address preventable SCD related deaths through SCD Treatment Guideline implementation
Collaborate with funders, health providers, government agencies and other stakeholders to maximize the effectiveness awareness exercises through research outcomes in less privileged communities

ABOUT US

Empowering Lives, Driving Change: Together Against Sickle Cell Disease.

Sickle cell is a progressive, lifelong illness that has long-term complications and affects everyone differently. Its symptoms are unpredictable and can be severe. This unpredictability can impact the quality of life on a daily basis for a person with sickle cell disease. In Ghana, approximately 15,000-18,000 babies are born every year with Sickle Cell Disease. Twenty-five percent (25%) of Ghanaians also carry the Sickle Cell Trait, this means that Sickle Cell Disease impacts every family directly or indirectly. Related health problems caused by Sickle Cell Disease ranges from infant mortality aneamia, jaundice...