What We Do

1. We align with Ghana’s National SCD Strategy

We align with Ghana’s National Strategy for Sickle Cell Disease and support Ghana’s 6 Implementation Strategies designed to improve health outcomes of individuals with SCD.

Specifically, this includes engaging in actions that help to:

1. Ensure universal newborn screening for SCD.
2. Develop mechanisms for catch-up screening.
3. Improve Facilities, Laboratory, and Diagnostic Capacities, Equipment, Infrastructure.
4. Build Capacity on SCD – Skilled Workforce, Pre-Service Training Institutions.
5. Improve Access to Medicines, Technologies, and Innovation.
6. Develop Outreach Services for SCD.

2. We identify needs and successes.

We monitor and report on nationwide needs and successes.

3. We raise awareness and provide education.

We raise and attempt to maintain public awareness and understanding about sickle cell disease.

4. We amplify sickle cell warrior voices.

We amplify the voices of Sickle Cell Warriors and their Families by sharing their stories, experiences, and advocacy through our platforms and events.

5. We fill screening gaps and facilitate enrollment in our medical care system.

We fill potential sickle cell screening gaps at selected events. We then enroll individuals, as needed, into the National Health Insurance Scheme (NHIS) program and connect them with the assigned healthcare center within their community for further care and treatment.

Time Period or Dates	What Our ACTIONS Have Accomplished
Time Period or Dates	What Our ACTIONS Have Accomplished	1 Aligned Actions with National Strategy	2 Identified National Needs & Successes	3 Raised Awareness & Provide Education	4 Amplified SCD Warrior Voices	5 Filled Selected Screening Gaps
	Facilitated Awareness Education Exercises to over 1,500 to children between the ages of 6 years to 18 years old in Basic, Junior High Schools, and Senior High School.
	Facilitated Awareness Education Exercises at the Borstal - Correctional Institute.
	The Ark Foundation for Abused Women
	Partnered the Rotary Club of Ghana, Ghana Education Services, to facilitate Education and Awareness programs at the
	Sponsored and facilitated Awareness and Education programs in partnership Ablekuma North Health Directorate and Ghana Education Service to Screened 250 basic school children in Saleria 1 and 2 cluster of schools in Ablekuma.
	Part of our outreach with Street Children is also to Feed the Streets and organize NHIS enrollment drives.
	Visited 9 regions across the country to facilitate Awareness and Education programs.
	Engaged in ongoing media campaigns to promote Awareness and Education of Sickle Cell Disease across the country.
	Made several outreach visits to various homes within improvished communities where we had identified children with Sickle Cell Gene who were not enrolled into treatment and supported the respective families to participate in treatment through their community healthcare centers.
	Need to add other work that had been done, prior to and since the activities listed above.

What Our ACTIONS Have Accomplished