• Statistics are important. They let us know how much work needs to be done and how much progress we are making.
• But sometimes we forget that people and their lives are more than just numbers.
• Each individual has a story.
• Each individual is part of a family of more individuals who care about each other.
• It is the families that often work, day and night, to keep their loved one alive and as well as possible.
• Friends, colleagues, employers and, of course, healthcare professionals are there to help, as well.
• In 2019, The Novartis Africa Sickle Cell Disease Program was launched in Ghana to help bridge disease management and outcome disparities between Africa and the rest of the world.
• They understood the importance of listening to people’s individual stories.
• As part of their partnership with Ghana, Novartis worked with Dr. Alex Kumar, a global health physician and photographer.
• Dr. Kumar helped Sickle Cell Warriors and their families to share stories from Ghana and around the globe.
• These brief but thoughtfully captured accounts feel like a labor of love.
• It is with deep gratitude to the Novartis Global Health team, and the extraordinary Dr. Alex Kumar, that we can offer an informative glimpse into the humanity behind the statistics.
1. Sickle Cell Disease – Ghana
K. Ohene-Frempong & J. Dzido – Two Fathers on a Mission –
Watch Here - (8:19 minutes)
2. The Untold Stories of Sickle Cell Disease – Joel – Ghana – Watch Here - (4:59 Minutes)
3. The Untold Stories of Sickle Cell Disease – Part 1 Global – Watch Here - (3:28 minutes)
4. The Untold Stories of Sickle Cell Disease – Part 2 Global – Watch Here - (4:54 minutes)