Our aim is to amplify the voices of Sickle Cell Warriors and families so that decision‑makers hear their lived experiences and act on them:
• help Warriors and caregivers tell their stories in the media and at community forums.
• equip representatives to participate in policy, strategy, and clinical guideline meetings.
• reduce stigma through human‑centered storytelling and public engagement.
• The Government of Ghana will receive public support it needs for implementing its Strategic Plan for SCD.
Our goal is to create platforms and support networks where Warriors and caregivers shape programs and policies.
We will measure progress by participation rates, speaking opportunities, and documented policy or service changes influenced by Warrior input.
We run listening sessions, collect testimonies (with consent), provide media and advocacy training, and coordinate representation at stakeholder events and working groups.
We assist Sickle Cell Warriors and their families to tell their stories and have a voice at local and national decision‑making tables, so that:
• Sickle cell Warriors and their families will receive the social respect and support that they need and deserve.
• People in the general public can make informed genetic decisions when they are planning to have children.
• The Government of Ghana will receive public support it needs for implementing its Strategic Plan for SCD
✓ The Sickle Cell Disease Association was formed in Kumasi through the efforts of the staff of the Education and Counseling Component of the Newborn Screening program to provide support for the patients and their families.
✓ The first President of the Association, Dr. E. K. Appiah, a prominent private medical practitioner in Kumasi, also serves on the Newborn Screening Advisory Committee. Dr. Appiah was elected in 2004 to serve as the National President of the Sickle Cell Association of Ghana.
To establish the Sickle Cell Disease Young Adult and Adolescent Support Group (SAYAS) at Korle Bu Teaching Hospital in 2025. This will be the first national support group that caters to our adolescents and young adults with Sickle Cell Disease in Ghana.
The purpose of this timely intervention is to provide adolescents and young adults Sickle Cell Warriors with:
✓ Health Education
✓ Reproductive Health-care Options
✓ Heath Screenings
✓ Psychosocial Support
✓ Mentorship
With the support and partnership of donors, it is our hope to raise GHS 75,000.00 toward the launch of SAYAS.
