Our aim is to provide facts and dispel misinformation so that:
• Sickle Cell Warriors and their families will receive the most well-informed health care available in Ghana.
• Sickle cell Warriors and their families will receive the social respect and support that they need and deserve.
• People in the general public can make informed genetic decisions when they are planning to have children.
• The Government of Ghana will receive public support it needs for implementing its Strategic Plan for SCD
Our goal is to raise awareness of Sickle Cell Disease from its current 15% impact (in 2025) to 75% in 3 years.
Through our community outreach efforts, we have made 25% progress towards our objective.
We engage in ongoing media campaigns to promote Awareness and Education of Sickle Cell Disease across the country.
This includes annual field campaigns, and routine media publications, radio, TV and social media education campaigns.
We assist Sickle Cell Warriors and their Families tell their stories and have a voice at local and national decision making tables, so that:
• Sickle cell Warriors and their families will receive the social respect and support that they need and deserve.
• People in the general public can make informed genetic decisions when they are planning to have children.
• The Government of Ghana will receive public support it needs for implementing its Strategic Plan for SCD
✓ The Sickle Cell Disease Association was formed in Kumasi through the efforts of the staff of the Education and Counseling Component of the Newborn Screening program to provide support for the patients and their family.
✓ The first President of the Association, Dr. E. K. Appiah, a prominent private medical practitioner in Kumasi, also serves on the Newborn Screening Advisory Committee. Dr. Appiah was elected in 2004 to serve as the National President of the Sickle Cell Association of Ghana.
To establish the Sickle Cell Disease Young Adult and Adolescent Support Group (SAYAS) at Korle Bu Teaching Hospital in 2025. This will be the first national support group that caters to our adolescents and young adults with Sickle Cell Disease in Ghana.
The purpose of this timely intervention is to provide adolescents and young adults Sickle cell Warriors with:
✓ Health Education
✓ Reproductive Health-care Options
✓ Heath Screenings
✓ Psychosocial Support
✓ Mentorship
✓ To accomplish our goal • With the support and partnership of donors, it is our hope raise 75,000 cedis towards the launch of SAYAS in 2025