Our Groundwork - Eight - Sickle Gene Action Foundation

8. The SPARCo Standards of Care for Sickle Cell Disease in Sub-Saharan Africa — August 2023

Ghana’s Groundwork for Evidence-Based Treatment Guidelines Tailored for Sub-Saharan Africa

Prof. Ohene-Frempong was a leader in the development of the Sickle Pan-Africa Research Consortium’s (SPARCo’s)
Standards of Care for Sickle Cell Disease
in Sub-Saharan Africa.

The standards focus on recommendations for:

Diagnosis
Health Maintenance and Preventive Therapy
Screening for Specific Complications
Special Management Protocols including:
- Hydroxyurea to reduce pain episodes
  and minimize complications of SCD.
- Blood transfusions to reduce the risk of stroke
  and other complications of SCD.

Standards of Care for Sickle Cell Disease in Sub-Saharan Africa
Click To Read

SPARCo Standards of Care for Sickle Cell Disease in Sub-Saharan Africa

From the FOREWORD

By the SPARCo List of Contributors

“This work was done under the esteemed leadership of Prof Ohene-Frempong (KOF) (Sickle Cell Foundation of Ghana)
who demonstrated exceptional dedication and unwavering commitment to improving the lives of SCD patients.
The innovative design approach developed by KOF and the Foundation using a multi-referral level guideline approach formed the blueprint for the creation of these guidelines, empowering healthcare professionals across the region to provide
evidence-based and compassionate care to those in need.
Both African and non-African SCD guidelines were used to draft locally appropriate SCD management recommendations.”

We embrace these guidelines within
the SPARCo consortium, and we acknowledge the immense responsibility
bestowed upon us to carry forward the legacy of Professor Ohene-Frempong.
Together, we embark on this transformative journey, equipped with the wisdom of the past and the hope of the future, guided by
the vision of Professor Ohene-Frempong, and committed to making a lasting impact
on the lives of SCD patients in Sub-Saharan Africa.